Communicating difficult news in a Neonatal Intensive Care Unit: do we meet parents’ expectations?
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Abstract
Introduction: Communicating difficult news in a Neonatal Intensive Care Unit deserves special attention, because it comprises a complex clinical scenario, where the information
and predictions about the clinical tables vary very quickly, due to the instability of the newborn. Objectives: To assess whether the strategies for communicating difficult news meet the expectations of parents and to propose improvements. Methods: Descriptive observational cross-sectional research, whose data collection took place over five months. We prepared a questionnaire with open and closed questions. We included parents of newborns hospitalized during the proposed period for data collection and whose length of
stay was longer/equal to seven days. Results: Sixty-two questionnaires were applied. Prematurity was responsible for 71% of the hospital admissions. The overall satisfaction index was over 90% in more than 55% of the questionnaires and less than/equal to 70% in 10,8% of the questionnaires. In open questions, the response to the most difficult news was related to the diagnosis of the child. Regarding the most disturbing factor for parents during the news, the most frequent response was “nothing”. The way the news was given was the main positive point raised. Most responses about what could have been different were “nothing”. As for the suggestions for improving the news, the main responses were “nothing” and “the place and the time available for news”. Conclusions: Most interviewees reported “satisfaction” regarding the communication of difficult news at the unit.
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